Mark Nicholas (![[info]](http://l-stat.livejournal.com/img/userinfo.gif){kind=small} cosmicity) wrote, |
Re: Infantile Spasms normal eeg
I guess I feel like it's important to note that the none of the 3 EEGs (including a 24 hour EEG during which she had 5 episodes) detected any epileptic activity whatsoever. So, we're not just talking about the IS pattern they look for, but nothing at all. You've heard of cases where they have the disorder and have completely EEGs like that?
I'd feel very strange joining the site without a CDKL5 diagnosis - it's a very specific website.
-m
I guess I feel like it's important to note that the none of the 3 EEGs (including a 24 hour EEG during which she had 5 episodes) detected any epileptic activity whatsoever. So, we're not just talking about the IS pattern they look for, but nothing at all. You've heard of cases where they have the disorder and have completely EEGs like that?
I'd feel very strange joining the site without a CDKL5 diagnosis - it's a very specific website.
-m
