Someone wrote in ![[info]](http://l-stat.livejournal.com/img/userinfo.gif){kind=small} cosmicity, |
Infantile Spasms normal eeg
I got a google alert for Infantile Spasms that contained your post about little Zoe. My daughter is diagnosed with a CDKL5 disorder. It is not uncommon for children with this disorder to have normal eegs in the early months while having IS.
Please have a look at http://www.cdkl5.com
A support group is set up for families with CDKL5 disorders or those suspected of having one. The details for joining are on the website. You are more than welcome to join and maybe get some answers for your dear little girl.
L, mother of AB & G
I got a google alert for Infantile Spasms that contained your post about little Zoe. My daughter is diagnosed with a CDKL5 disorder. It is not uncommon for children with this disorder to have normal eegs in the early months while having IS.
Please have a look at http://www.cdkl5.com
A support group is set up for families with CDKL5 disorders or those suspected of having one. The details for joining are on the website. You are more than welcome to join and maybe get some answers for your dear little girl.
L, mother of AB & G
